A rare disease has left a 12-year-old girl in Gujrat, India, with a large tumour covering her neck and parts of her chest.

According to Surbhi Ben's father, they started noticing small lumps on her face when she was 3-years-old and since then tumour has been growing and covered her neck and extended internally.

Initially, they went to the local doctors of the area but their medicines did not impact Surbhi's health.

Surbhi's father could not go to the specialist for further diagnosis due to financial constraints.

The 12-year-old is a very vibrant girl and loves the company of her friends. Nobody in her town makes fun of her.

She is optimistic about her treatment but her family is worried if she doesn't get treated then her future will be ruined.