https://go.drivelive.club/?book=1492930709
At the age of sixty-nine Nigel Murray, a retired university lecturer and former Royal Navy officer, was diagnosed with Multiple System Atrophy (MSA). MSA is a rare and degenerative neurological disorder. It is very difficult to diagnose and often resembles Parkinson?s disease. Dementia is not always a feature of MSA, but it was for Nigel.For four years Nigel?s wife, Eileen, kept a diary. This was her "safety valve" - an outlet for the daily stresses of caring for him at home as his health slowly deteriorated. In it she gives a frank and detailed account of his bizarre hallucinations, his challenging and erratic behaviour, the relentless struggle with his incontinence and the endless disturbed nights.Eileen?s dry Scottish wit and remarkable stoicism help her through her darkest moments. Her diary will move you one moment and make you laugh the next. You can?t help but smile at Nigel's trousers with the "appetite mechanism" and his special "anti-dandruff comb".As the dementia advances, Nigel retreats into his own busy world of naval and lecturing duties, harking back to his earlier days. Eventually, the burden of running her own "one-woman nursing home" becomes too much for Eileen and her quest to find respite care begins. This presents challenges of its own.This true and touching account offers a unique insight into the day-to-day struggle of caring for someone with MSA or a dementia-related disease, as well as the emotional, practical and financial implications.A proportion of the proceeds from this book will be donated to the Multiple System Atrophy Trust.